simbaahoor Posted May 13, 2021 Share Posted May 13, 2021 I was diagnosed with Ehler's Danlos Syndrome, as well as Mast Cell Activation Syndrome (MCAS), when I was in the US about ten years ago. My conditions were mild back then. However, recently my conditions got worse, I got more joint pain that interrupts my sleep at night, as well as some allergy symptoms that resulted in fainting. I went to see a geneticist, and an immunologist at a few private hospitals in Bangkok. However, all the doctors just prescribed me some NSAIDs, and allergy relief meds, and reassured me that I am absolutely normal, and it's all in my head. I never realized doctors here would blame patients for their conditions if they cannot find a way to heal. So I went for a telemedicine with a specialist from the US, he would like to do some blood work for MCAS, and Mycotoxin, in which both the hospitals here do not have tested. So I only did my Mycotoxin test by sending urine sample to a lab in the US. The results are positive, however, since I cannot do other types of blood work, the physician cannot proceed. For now, I only rely on internet resources, and Facebook groups to help me with the conditions. So I am quite discouraged at this point. Does anyone else have similar chronic conditions? Any physicians do you recommend? Link to comment Share on other sites More sharing options...
Sheryl Posted May 14, 2021 Share Posted May 14, 2021 Have you consulted this immunologist: https://www.bumrungrad.com/en/doctors/Hiroshi-Chantaphakul If not, he is who I would suggest. Before going, get a written report from your US doctor including recommendation for further blood tests Link to comment Share on other sites More sharing options...
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